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United Nations
Disabled Persons Bulletin

Bulletin No 1 of 1996

Introduction

This issue of the Bulletin focuses on the work of the Special Rapporteur on Disability of the Commission for Social Development. Mr. Bengt Lindqvist, related to the circulation of his second questionnaire to Governments on monitoring the implementation of the Standard Rules on Equalization of Opportunities for Persons with Disabilities. It also includes brief reports on preparations for the Tenth Paralympic Games and the Third Paralympics Congress, which will be held in Atlanta, United States of America, and on selected activities of the non-governmental community.

Contents


Feature Article

Monitoring implementation of the Standard Rules:
Second Questionnaire of the Special Rapporteur on Disability

The Special Rapporteur on Disability of the Commission for Social
Development, Mr. Bengt Lindqvist (Sweden), sent his second monitoring
questionnaire to Governments in December 1995.

The questionnaire has three purposes:

  • (a) To assess the level of implementation of the Rules;
  • (b) To identify the main changes and accomplishments in the field of
    disability, including positive aspects and cases of success in the
    implementation of the Rules;
  • (c) To identify major problems and obstacles encountered during the
    implementation process.

The questionnaire focuses on the nature and scope of the implementation
of the Standard Rules by legislative, administrative or regulatory means.

Replies to the second questionnaire will be used in the preparation of
the second report that the Special Rapporteur will submit for the
consideration of the Commission for Social Development at its thirty-fifth
session, which is scheduled to be held in New York in early 1997.

The text of the second questionnaire of the Special Rapporteur is
presented below for information.

QUESTIONNAIRE

Introductory remarks

Most questions can be answered by marking the alternative that applies
in your case. In a number of questions, I also invite you to specify or to
give details. The questions have as far as possible been grouped according to
the Rule areas, although sometimes one question involves two Rules at once.

Definitions of terms

Throughout the questionnaire, the following terms are used. In order to
avoid misunderstanding I include their definitions:

(a) The term ACCESSIBLE includes but is not limited to physical areas in
society, such as housing, buildings, public transport services, streets and
other outdoor environments, and also includes all facilities and information
services. For instance, a telecommunication system must be accessible to
hearing or speech impaired, deaf and blind persons;

(The remaining definitions are taken from the Standard Rules)

(b) "The term DISABILITY summarizes a great number of different functional
limitations occurring in any population in any country of the world. People
may be disabled by physical, intellectual or sensory impairment, medical
conditions or mental illness. Such impairments, conditions or illnesses may be
permanent or transitory in nature;

(c) "The term REHABILITATION refers to a process for enabling persons with
disabilities to reach and maintain their optimal physical, sensory,
intellectual, psychiatric and/or social functional levels, thus providing them
with the tools to achieve a higher level of independence;

(d) "The term EQUALIZATION OF OPPORTUNITIES means the process through which
the various systems of society and the environment, such as services,
activities, information and documentation, are made available to all,
particularly to persons with disabilities".

SECTION I
General policy questions

1. Is there an officially recognized disability policy in your country, and
in what way is it expressed?

IF NO, PLEASE PASS TO QUESTION 3

(YOU MAY MARK MORE THAN ONE)

( ) Expressed in law
( ) Guidelines adopted by the Government
( ) Guidelines adopted by a national disability council or similar body
( ) Policy adopted by political parties
( ) Policy adopted by Non-governmental organizations
( ) No officially recognized policy
( ) Other. Please specify:

2. Where is the emphasis in this national policy?

RANK IN ORDER OF EMPHASIS (i.e., 1, 2, 3, 4 or 5), WHERE 1 INDICATES THE
STRONGEST EMPHASIS:

( ) Prevention
( ) Rehabilitation
( ) Individual support
( ) Accessibility measures
( ) Anti-discrimination law

3. Since the adoption of the Standard Rules, has your Government done
anything to initiate and support information campaigns conveying the
message of full participation?

( ) No
( ) Yes

If yes, Please describe:

SECTION II
Legislation (Rule 15):

"States have a responsibility to create the legal bases for measures to
achieve the objectives of full participation and equality for persons
with disabilities."

4. The rights of persons with disabilities are protected by:

( ) Special legislation to provide protection to persons with
disabilities
( ) General legislation applicable to all citizens
( ) Combination of the above two types of legislation

5. Which institutional mechanism(s) / arrangement(s) have been adopted to
protect the rights of persons with disabilities?

(YOU MAY MARK MORE THAN ONE)

(a) Judicial mechanisms

( ) Due process (legal remedy through the courts)
( ) Recourse procedure by a special agency dealing with anti-
discrimination issues
( ) Others

(b) Administrative and other non-judicial bodies

( ) Ombudsman or similar functions
( ) Governmental body (administrative)
( ) Independent expert bodies
( ) Special arbitration/conciliation body
( ) Others

6. Does general legislation apply to persons with different disabilities
(e.g., mental disabilities) with respect to:

( ) Education
( ) Employment
( ) The right to marriage
( ) The right to parenthood/family
( ) Political rights (voting right/right to hold office in legislatures,
Governments, judiciaries and other public authority or influence)
( ) Access to court-of-law
( ) Right to privacy
( ) Property Rights

7. Which of the following benefits are guaranteed by law to persons with
disabilities?

(YOU MAY MARK MORE THAN ONE)

( ) Medical care and other health care
( ) Training, rehabilitation and counseling
( ) Financial security (income maintenance/insurance)
( ) Employment
( ) Independent living
( ) Participation in decisions affecting themselves
( ) Other. Please specify:

8. Has any new legislation concerning disability been enacted since the
adoption of the Rules?

( ) No
( ) Yes. Please specify:

SECTION III
Accessibility (Rule 5):

"States should recognize the overall importance of accessibility in the
process of the equalization of opportunities in all spheres of society.
For persons with disabilities of any kind, States should introduce
programmes of action to make the physical environment accessible; and
undertake measures to provide access to information and communication."

9. Are there laws, regulations and/or guidelines to ensure accessibility of
the built environment?

( ) No
( ) Yes

10. If yes, does the legislation and other forms of regulation concerning
the built environment establish national design standards or codes which
require that:

(YOU MAY MARK MORE THAN ONE)

( ) Schools, hospitals, clinics, community centers, rehabilitation
centers, theaters etc, are made accessible
( ) Outdoor environment, for instance, pavements are made accessible
( ) Land, sea and air transportation are made accessible
( ) Housing is made accessible

11. Who has the supervisory function in your country in ensuring that
accessibility in the built environment is observed?

(YOU MAY MARK MORE THAN ONE)

( ) National authority
( ) Local governments
( ) The constructor
( ) The organizers/providers of services
( ) No responsible body exists
( ) Other. Please specify:

12. What measures have been promoted by your Government to facilitate
accessibility in the built environment?

(YOU MAY MARK MORE THAN ONE)

( ) Levelling off pavements
( ) Marking parking areas
( ) Installing automatic doors
( ) Installing or widening lifts and installing accessible toilets
( ) Access to public places such as stadiums, commercial centers,
theaters and shops
( ) Improving accessibility in housing
( ) Financial incentives (e.g., interest-free loans) for accessibility
measures when building and renovating housing
( ) To provide financial support for the costs of adapting private
buildings to the needs of persons with disabilities
( ) Installing special lighting for visually impaired
( ) Using contrast colors for visually impaired
( ) Provision of specially adapted motor vehicles
( ) Other. Please specify:

13. Are there any special transport arrangements for persons with
disabilities (e.g. free or subsidized transport)?

( ) No
( ) Yes. Please specify:

IF YES: For what purposes is special transport available?

(YOU MAY MARK MORE THAN ONE)

( ) Medical treatment
( ) Education
( ) Work
( ) Recreational purpose
( ) Other. Please specify

14. When planning to build accessible environments, to your knowledge which
are the most difficult obstacles?

(YOU MAY MARK MORE THAN ONE)

( ) Attitudinal factors
( ) Economic/budgetary factors
( ) Technical factors
( ) Geographical and climatic factors
( ) Lack of legislation and regulations
( ) Lack of planning and design-capacity
( ) Lack of knowledge, research and information
( ) Lack of user participation
( ) Lack of cooperation from other organizations/institutions
( ) Lack of enforcement mechanism
( ) Other. Please specify:

15. Is there a disability awareness component incorporated in the training
of planners, architects and construction engineers?

( ) No
( ) Yes

16. What is the status of sign language for deaf people in your country?

( ) Recognized as the official language of deaf people
( ) Used as the first language in education of deaf people
( ) Recognized as the main means of communication between deaf persons
and others
( ) Other. Please specify:
( ) No officially recognized status

17. Are there government measures to encourage media to make their
information services accessible for persons with disabilities?

( ) No
( ) Yes

18. Are there government measures to make other forms of public information
services accessible for persons with disabilities?

( ) No
( ) Yes. Please specify:

19. Which of the following services are provided in order to facilitate
information and communication between persons with disabilities and
other persons?

(YOU MAY MARK MORE THAN ONE)

( ) Literature in Braille
( ) Literature on tape
( ) News magazines on tape/Braille
( ) Sign language interpretation available for any purpose
( ) Sign language interpretation available for major events
( ) Easy readers for persons with mental disabilities
( ) Other. Please specify:
( ) None

SECTION IV
Organizations of Persons with Disabilities (Rule 18):

"States should recognize the right of the organizations of persons with
disabilities to represent persons with disabilities at national,
regional and local levels. States should also recognize the advisory
role of organizations of persons with disabilities in decision-making on
disability matters."

20. Is there any national umbrella organization of organizations of persons
with disabilities?

( ) No
( ) Yes

IF YES: What organizations are represented / not represented in the
umbrella? Please give details:

21. Are there legal provisions that mandate the representatives of persons
with disabilities to participate in policy-making and to work with
governmental institutions?

( ) No
( ) Yes

22. When preparing laws, regulations and/or guidelines with a disability
aspect, are the views of organizations of persons with disabilities
taken into account?

( ) Never ( ) Sometimes ( ) Often ( ) Always

23. If the views of the organizations are taken into account, at what level
does that occur?

( ) National
( ) Regional
( ) Local level

24. What support is given by your Government to existing or new
organizations of persons with disabilities?

( ) Financial
( ) Organizational/logistic
( ) No support is given
( ) Other. Specify:

25. To what extent do persons with disabilities participate in political and
public life?

1= Very limited extent 5= Great extent

1 2 3 4 5

Government -- -- -- -- --
Legislatures -- -- -- -- --
Judiciary -- -- -- -- --
Political parties -- -- -- -- --
Non-governmental organizations -- -- -- -- --

26. What role do the organizations of persons with disabilities have in your
country?

(YOU MAY MARK MORE THAN ONE)

( ) Advocate rights and improved services
( ) Mobilize persons with disabilities
( ) Identify needs and priorities
( ) Participate in the planning, implementation and evaluation of
services and measures concerning the lives of persons with
disabilities
( ) Contribute to public awareness
( ) Provide services
( ) Promote/organize income generating activities
( ) Other. Please specify:

SECTION V
Coordination of Work (Rule 17):

"States are responsible for the establishment and strengthening of
national coordinating committees, or similar bodies, to serve as a
national focal point on disability matters."

27. Is there a national coordinating committee or similar body?

( ) No
( ) Yes

28. Is the coordinating committee reporting to:

( ) A particular ministry. Please specify:

( ) To the Prime Minister's office or other central body? Please
specify:

29. Does the committee include representatives of:

Ministries of:

( ) Finance
( ) Justice
( ) Health and Social Affairs
( ) Employment
( ) Transport
( ) Housing
( ) Education
( ) Culture
( ) Planning

( ) Organizations of persons with disabilities
( ) Other NGOs
( ) Private sector
( ) Other. Please specify:

30. Is the national coordinating committee expected by the Government to
participate in policy development?

( ) No
( ) Yes

31. Is the national coordinating committee expected to perform other tasks?

( ) No
( ) Yes
IF YES, Please specify:

32. What effects would you say that the establishment of the coordinating
committee has had?

(YOU MAY MARK MORE THAN ONE)

( ) Improved coordination of measures/programmes etc. in the disability
field
( ) Improved legislation
( ) Improved integration of responsibility
( ) Better dialogue in the disability field
( ) More accurate planning
( ) More effective use of resources
( ) Improved promotion of public awareness
( ) Too early for assessment
( ) Other. Please specify:

33. Has the adoption of the Standard Rules led to rethinking of the approach
to disability policy?

********
Note: As of 10 May 1996, 65 Governments have submitted replies to the
second questionnaire.

^Return to top.

Special Events

Tenth Paralympic Games (Atlanta, 16-27 August 1996)

During the summer of 1996 Atlanta, United States of America, will serve
as host for more than 4,000 athletes, representing more than 100 hundred
nations, who will be participating in the Tenth Paralympic Games. The Games
will be held for 10 days, from 16 to 27 August, with athletes competing in 17
different sports and two demonstration events. In addition to the athletes,
more than 1,000 coaches and team staff, 1,500 officials and 15,000 volunteers
are expected to be in attendance.

The Paralympics were first held in Rome in 1960, and have been held in every
Olympic year since then. The Paralympics serve as a forum for the talents of
athletes representing four international federations of persons with
disabilities: the blind, paraplegics and quadriplegics, people with cerebral
palsy, and amputees. More than 1.5 million spectators are expected in Atlanta
based on the more than 1.5 million spectators who attended the 1992 Paralympic
Games in Barcelona.

^Return to top.

Third Paralympic Congress (Atlanta, 12-16 August 1996)

This year's games will be held in conjunction with the Third Paralympic
World Congress: "Humanity, equality, destiny". The Congress will be held just
prior to the Games (August 12-16 1996). It is expected to attract an
additional 2,000 people to Atlanta from all over the world who will come to
discuss issues of business, social, and recreational activities for persons
with disabilities. Issues to considered at the Congress will include
political and economic empowerment and furthering the disabled sports
movement. Congress organizers anticipate that the union of disability rights
groups and disabled athletes will be beneficial to people with disabilities
throughout the world.

The Congress is estimated to cost an estimated $1.2 million, which is
being covered by corporate sponsors and local community groups. The United
Nations Voluntary Fund on Disability is providing a co-financing grant to
enable participation by experts from developing countries who would not
otherwise be able to participate in this major forum to exchange skills,
knowledge and information and to establish and develop networks.

For further information, please contact:

Atlanta Paralympic Organizing Committee
1201 West Peachtree Street NE, Suite 2500
Atlanta, GA 30309-3448
United States of America
Tel: ++(404) 588-1996 ; TDD: ++(404) 724-2888
Fax: ++(404) 724-2820
E-mail: apoc96@ibm.net

^Return to top.

Activities of the Non-Governmental Community

Quality of life movement

For the past 30 years, issues related to the quality of life for persons
with disabilities, particularly individuals with mental retardation, have
entered the paradigm of concerned professionals in the disability field.
Quality of life encompasses the discrepancy between a disabled persons'
expected and achieved needs and desires. The term refers to the extent to
which an individual is able to control or influence key aspects of his or her
life. 1/

Recent activities of the quality of life movement include convening
international conferences and meetings on issues related to quality of life
initiatives. The European Commission held the First European Conference on
Quality of Life, European Definitions of Quality of Life: Towards a Synthesis
(Gilleleje, Denmark, 10-14 December 1994; it issued a report on initiatives
identified at the Conference. The Conference focused on establishing contexts
in which persons with disabilities and their providers can enter into
meaningful dialogue. The Conference recommended that persons with
disabilities help write their own quality of life projects as a means of
enabling and empowering persons with disabilities. Conference participants
further recommended building a network for persons with disabilities to
participate in innovative research projects and share experiences.

Other recent activities include organizing the Second European
Conference on Quality of Life: A Consideration of Good Practice (Porvoo,
Finland, 22-26 November 1995); planning the National Consensus Conference on
Quality of Life (to be held in New York, 27-31 May 1997); and organizing a
meeting of the International Association for the Scientific Study of
Intellectual Disability, scheduled for Helsinki in July 1996, which will
review and discuss international disability policy.

^Return to top.

World Federation of Psychiatric Users

The Federation (WFPU) was established in 1991 to support the development of the mental health user/survivor/consumer movement and to advocate their human rights and self determination throughout the world. In addition to providing information to mental health service users, WFPU highlights the violations of rights of persons who use mental health services, promotes self- help alternatives and services, and educates professionals, politicians and the media on issues of mental health services. WFPU also seeks to build alliances with interested bodies and organizations around the world. It currently has several hundred members in 25 countries.

For more information on WFPU, contact:

World Federation of Psychiatric Users
c/o Ms. Mary O'Hagan, P.O. Box 46 018
Herne Bay, Auckland , NEW ZEALAND
Tel: ++09 378 7477
Fax: ++09 360 2180

^Return to top.

Asia Disability Institute, and Human Care Association (Japan)

The Asia Disability Institute (ADI) was established in 1990 near Tokyo,
with a view to assisting persons with disabilities throughout Asia to further
their independent living. Activities of ADI range from the dissemination of
information on the independent living movement to the provision of technical
advice and assistance to various groups of persons with disabilities in Asia
in furthering their own efforts to live independently.

The Human Care Association was founded in 1986 as a day-activity centre
for people with disabilities, and it later developed into one of the first
independent living centres in Japan. The Human Care Association provides
services on request to persons with disabilities to further their abilities to
live independently, and it offers opportunities to persons with disabilities
to help them find employment through a community-based services network.

The Centre offers three programmes:

(a) Independent living skills training;
(b) Peer counselling;
(c) Overseas training.

In 1991, 12 independent living centres established the Japan Council on
Independent Living Centre.

ADI and HCA work closely to assist persons with disabilities both in
Japan and in other Asian countries to enhance the quality of their lives
through a variety of international cooperation activities.

One of the most successful examples of ADI-HCA cooperation is the
Independent Living Skill Training Manual (Tokyo: Human Care Association,
1993). The Manual is designed to serve as a reference and resource guidor use
both by disabled persons themselves and in workshops in which persons with
disabilities can learn practical skills for independent living on the basis of
peer counselling and practical exercises.

Mr. Shoji Nakanishi, Director of the Human Care Association, and Mrs.
Yukiko Nakanishi, President of Asia Disability Institute, visited the Division
for Social Policy and Development of the Department for Policy Coordination
and Sustainable Development on 1 May 1996 to provide a brief introduction to
their work and exchange views on disabilities issues and trends.

For further information or to order the Manual, please contact:

Human Care Association
23 Teramachi, Hachioji
Tokyo 192
JAPAN
Tel: ++0426 23-3911;
Fax: ++0426 23-7348.

^Return to top.

Publication Notes

Manual for the Development of Statistical Information for Disability
programmes and Policies

The Statistical Division of the Department for Economic and Social
Information and Policy Analysis at the United Nations Secretariat has issued
the Manual for the Development of Statistical Information for Disability
Programmes and Policies to support and encourage more systematic approaches to
data collection and the development of statistical information related to
disability.

The Manual was prepared by the United Nations Statistics Division in
collaboration with the Rehabilitation Unit of the World Health Organization.
The Manual is aimed at programme managers and others concerned with the
production and use of statistical information for implementing, monitoring and
evaluating disability policies and programmes.

The Manual contains:

(a) Information on four trends that have emerged in the development
of disability statistics: specifically (i) the recognition of the human
rights of people with disabilities; (ii) the expansion of
community-based rehabilitation programs; (iii) the development of
standard terminology and an internationally recognized system for
defining and classifying the situation of persons related to impairment,
disability and handicap; (iv) a rapidly increasing demand for
information and survey research in the field of rehabilitation and human
functioning;

(b) Major sources of existing data and statistical information on
disability, and attributes to consider in appraising their quality.

(c) An overview of approaches to the collection of disability
statistics and the steps required to initiate new data-collection
efforts;

(d) The major uses of statistical information on disability for
programme planning and evaluation;

(e) The acquisition and uses of information on disability in
especially difficult situations, such as emergency and refugee relief
situations.

The Manual (United Nations publication, Sales No. E.96.XVII.4; ISBN
92-1-161380-0) is available from bookstores and distributors throughout the
world. It may be ordered directly from:

United Nations Bookshop
Concourse level, 46th Street and 1st Avenue
New York, NY 10017
UNITED STATES OF AMERICA
Tel: (212) 963-7680
(800) 553-3210
Fax: (212) 963-4910

The Statistics Division plans to produce a second technical report in
1996, the Handbook on Census and Survey Methods for Development of Impairment,
Disability and Handicap statistics. The Handbook will discuss concepts,
definitions and strategies concerning the measurement and assessment of human
activity through an improved study of the International Classification of
Impairments, Disabilities and Handicaps.

UNESCO video on World Conference on Special Needs Education

The United Nations Educational, Cultural and Scientific Organization
(UNESCO) recently produced a video on the World Conference on Special Needs
Education, (Salamanca, Spain, June 1994), which attracted more than 300
participants representing 92 Governments and 25 international organizations.
The Conference provided a forum for reviewing and discussing means by which
schools can better serve the training and educational needs of all children,
particularly those with special educational needs. The Conference adopted the
Salamanca Statement on Principles, Policy and Practices in Special Needs
Education, and formulated a Framework for Action; both documents are
available from UNESCO at the address listed below.

The education of children with special needs is an issue of concern to
all countries, and it cannot advance effectively in isolation of other
educational services. Special needs education must be an integral part of
both an overall educational strategy and new social and educational policies
as well.

The UNESCO video on the Conference contains two parts. Part 1 presents
an overview of new thinking in special needs education, introduced by the
Director-General of UNESCO, Dr. Federico Mayor. Part 2 provides summaries of
recommendations made in the "Framework for Action", and has five sections, on
school factors; training educational personnel;
links with community-based rehabilitation; community perspectives; policy and
legislation.

The following people are featured in the programme:

  • Anupam Ahuja, National Council for Educational Research and Training, India;
  • Mel Ainscow, School of Education, University of Manchester, United Kingdom of Great Britain and Northern Ireland;
  • William Brohier, President, International Council for Education of People with Visual Impairment, Malaysia;
  • Andrea Canevaro, Universita Degli Studi, Bologna, Italy;
  • Cynthia Duk, Consultant, UNESCO Regional Office, Chile;
  • Constance Facia, CBR Programme, Benin; N.K. Jangira, Department of Teacher Education and Special Education, India; Joseph Kisanji, Course Tutor, University of Manchester, United Kingdom;
  • Bengt Lindqvist, Special Rapporteur on Disability of the Commission for Social Development, former Member of Parliament, Sweden;
  • Peter Mittler, School of Education, University of Manchester, United Kingdom;
  • Lawrence Ofori-Addo, CBR Programme, Accra, Ghana;
  • Brian O'Toole, CBR Programme, Guyana; Deng Pufang, Chairman, Disabled People's Federation, China;
  • Mrs. D. Rauws-Binnendlik, Parent, the Netherlands; and Lena Saleh, Special Needs Education, UNESCO, Paris.

The video is available in VHS format (PAL/SECAM), Lasts 55 minutes and costs US$40 (or equivalent in other currencies). It was produced by UNESCO in 1995 and is available in English, French and Spanish. Please contact:

Special Needs Education, Division of Basic Education
UNESCO
7 Place de Fontenoy
75352 Paris 07
FRANCE
Tel: ++33-1 40-65-94-05
Fax: ++33-1 45-68-11-37

^Return to top


Notes

1/ See Roy Brown, Patricia Brown and Max Brayer "A quality of life model: new challenges arising from a sixty year study," in Quality of Life for Persons with Disabilities, David Goode, ed. (Cambridge, Massachusetts: Brookline Books, 1994).


The Disabled Persons Bulletin is published three times a year in
English, French and Spanish by the United Nations Secretariat.
Please address correspondence to:

Editor, Disabled Persons Bulletin
Division for Social Policy and Development
United Nations Secretariat, Room DC2-1342
New York, NY 10017
UNITED STATES OF AMERICA


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