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UN Programme on Disability   Working for full participation and equality

United Nations
Disabled Persons Bulletin

Bulletin No 2 of 1999 Page 2/6 PrevBulletin IndexNext

Normative basis for the development of disability statistics and indicators

Knowing the numbers of persons with disabilities in a country and monitoring equality of opportunity and achievements made in terms of economic, social, political and cultural rights requires an enormous amount of current and reliable data. Both the World Programme of Action concerning Disabled Persons and the Standard Rules on the Equalization of Opportunities for Disability make reference to the need of relevant disability statistics and indicators to be used in the development and implementation of appropriate policy and programmes and their monitoring and evaluation.

The World Programme of Action concerning Disabled Persons states that research into the social, economic and participation issues that affect the lives of disabled persons and their families, and the ways these matters are dealt with by society, is of particular importance.6

Knowing the numbers of persons with disabilities in a country and monitoring equality of opportunity and achievements made in terms of economic, social, political and cultural rights requires an enormous amount of current and reliable data.

In order to give a more perceptive understanding of the relations between society at large and persons with disabilities, the World Programme of Action identified the need to undertake studies focusing on the socio-cultural aspects of disability. It suggests that the results of such studies will make it possible to propose approaches suited to the realities of the human environment.7

Notwithstanding the relevant research data that may be obtained through national statistical offices and census bureau, the World Programme of Action noted that a household survey programme designed to collect information about disability issues is more likely to produce useful results than a general census of the population.8 In addition, it called for the development of social indicators relating to the education of persons with disabilities to assist the analysis of problems in access to education and plan programmes accordingly.9

Adopted at the end of the United Nations Decade of Disabled Persons, the Standard Rules on the Equalization of Opportunities for Disability10 also make specific reference to the production and dissemination of disability statistics and research. Rule 13, entitled "Information and research", calls for the collection of gender-specific statistics and other information concerning the living standards of persons with disabilities in conjunction with national censuses and household surveys including questions on programmes and services and their use.

In addition, the rule calls for:

  • Establishment of a data bank on disability;
  • Initiation and support of research programmes on social, economic and participation issues;
  • Development and adoption of terminology and criteria for the conduct of national surveys;
  • Facilitation of the participation of persons with disabilities in data collection and research;
  • Exchange and dissemination of data collection, research and research findings.

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Monitoring and evaluation

The issues of monitoring and evaluation and the centrality of data for these processes are addressed by the World Programme of Action, according to which monitoring and evaluation should be carried out at periodic intervals at the international and regional levels, as well as at the national level. It is essential that assessment of the situation relating to persons with disabilities be carried out periodically and that a baseline be established to measure developments.11

The most important criteria for evaluating the World Programme of Action are suggested by the theme of the International Year of Disabled Persons, "Full participation and equality."

Specifically, the World Programme of Action calls for:

  • The United Nations system to carry out a critical periodic evaluation of progress made in implementing the World Programme of Action; 12
  • The Department of Economic and Social Affairs of the United Nations Secretariat, in consultation with Member States and relevant United Nations agencies and other organizations, to select evaluation indicators; 13
  • The Commission for Social Development to play an important role in this respect; 14
  • The United Nations, together with the specialized agencies, to develop, on a continuing basis, suitable systems for the collection and dissemination of information to ensure the improvement of programmes at all levels on the basis of evaluation results.15

At the regional level, the World Programme of Action requests the regional commissions to:

  • Carry out monitoring and evaluation functions that would contribute to the global assessments carried out at the international level; 16
  • Monitor progress in their regions, identify needs, collect and analyse information, sponsor action-oriented research, supply advisory services and engage in technical cooperation activities;17
  • Include in their action plans research and development, preparation of information materials and the training of personnel;18
  • As an interim measure, facilitate activities in the field of technical cooperation among developing countries which are related to the objectives of the World Programme of Action; 19
  • Encourage, with other regional bodies, regional and subregional cooperation; 20
  • Promote the development of organizations of persons with disabilities as an essential resource.21

A notable example of programme monitoring is provided by the Asian and Pacific Decade of Disabled Persons, 1993-2002. Governments and the non-governmental community have established targets and mechanisms to review the progress made and obstacles encountered implementing the goals of the Decade. To this end, a regional review was held at the Meeting of Senior Officials to Mark the Mid-Point of the Asian and Pacific Decade of Disabled Persons (Seoul, 26-29 September 1997). As a follow-up, the Economic and Social Commission for Asia and the Pacific (ESCAP) will hold a meeting on the theme "Meeting the targets of the Asian and Pacific Decade for Disabled Persons, and equalization of opportunities for persons with disabilities in the ESCAP Region" (Bangkok, 22-24 November 1999).

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6 World Programme of Action concerning Disabled Persons, para. 186.
7 Ibid., para. 184.
8 Ibid., para. 186.
9 Ibid., para. 184.
10 General Assembly resolution 48/96, annex, adopted in 1993.
11 World Programme of Action concerning Disabled Persons, para. 194.
12 Ibid., para. 195.
13 Ibid., para. 194.
14 Ibid., para. 195.
15 Ibid.
16 Ibid., para. 196.
17 Ibid., para. 177.
18 Ibid.
19 Ibid.
20 Ibid.
21 Ibid.

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